Thursday, April 23, 2009

While we're waiting...

Thank you to all of you that have been praying.

We got the results back from the Fish study yesterday. That test is for problems with chromosomes 13, 18 & 21. Dr R told me that Olivia has Trisomy 18 which means there is additional material in her 18th chromosome. This explains the heart problems, the clenched fists, the brain things we have seen. 98-99% sure Olivia has this problem, the full panel results in about 12 days will confirm. What does it mean? Dr R has not given Olivia much hope; the websites aren't encouraging as 50% of children with this problem are born still born, of those born alive, less than 10% survive to their 1st birthday, etc. The higher the weight when born, the better the odds and Olivia is nowhere near where she needs to be, but girls are more likely to live than boys.

There is no surgery by human hands that can be done. There is no magic pill, no therapy, nothing but to wait. She is in the hands of the LORD and only He has the power to heal her however He so chooses. Yesterday we told the girls that Olivia may not come home with us but go to be with Jesus in heaven, then last night as I prayed with the girls, Sienna puts her hand on my arm and says "We forgot to pray for Olivia to come home with us." so we prayed for Olivia. The odds are not in favor of Olivia, but the LORD is not about odds. That is what I tell myself. But what do we wait for? I don't know what we wait for, but I am trying to wait on the LORD, and wait for His answer, whatever His answer is and just know that He is God.

Thank you LORD.

8 comments:

Erin said...

I don't know if this will help but I have been praying for a little baby named April Rose who has Trisomy 18. This is a link to her blog...http://www.littleoneapril.blogspot.com/

We will continue to pray.((hugs))

* April's Mom * said...

The commenter above actually just left me a message on my blog and I came over and looked at your site. I am so sorry for what you are going through. I have been there...

My girl has 2 pretty serious diagnosis' including Trisomy 13. But I am 36 weeks, (after Dr.'s said I should terminate at 22 weeks) and still pressing forward.

Please feel free to visit my blog or contact me personally through the e-mail link on my page.

P.S. - Unrelated, but I love your tag/word cloud on your right sidebar. Can I ask how you got that? I have been trying to figure that one out! Thank You!

I will be praying for you! God Bless!

Peaceful Chaoz said...

Praying, praying, praying.

Love you!!

Stephanie said...

Waiting is not easy, especially when it's about your little ones. I know a little about that...

We are praying for that miracle! And Jaedon and Audrey panic when they forgot to pray for your baby too. So we have to back up and make sure we pray for her.

Erin said...

I want to apoligize to you(April's Mom). I was mistaken when I thought your beautiful April had trisomy 18. Thank you so much for reaching out. It is amazing to me how the internet can connect the body of Christ in amazing ways. Blessings to you on this day that the Lord has made!

Mrs. Mother said...

I am so sorry you have received this diagnosis. I was in your shoes last year. big hugs to you.

annifranni said...

I will be praying for you and your family.

Melissa said...

I know of several blogs of Trisomy 18 mothers, if you are interested. I know they thank the Lord that they are able to minister to other families who are facing the same trials they did. You are in our prayers!

http://fahmer.blogspot.com/

http://noahandjulieroberts.blogspot.com/