Thank you to all of you that have been praying.
We got the results back from the Fish study yesterday. That test is for problems with chromosomes 13, 18 & 21. Dr R told me that Olivia has Trisomy 18 which means there is additional material in her 18th chromosome. This explains the heart problems, the clenched fists, the brain things we have seen. 98-99% sure Olivia has this problem, the full panel results in about 12 days will confirm. What does it mean? Dr R has not given Olivia much hope; the websites aren't encouraging as 50% of children with this problem are born still born, of those born alive, less than 10% survive to their 1st birthday, etc. The higher the weight when born, the better the odds and Olivia is nowhere near where she needs to be, but girls are more likely to live than boys.
There is no surgery by human hands that can be done. There is no magic pill, no therapy, nothing but to wait. She is in the hands of the LORD and only He has the power to heal her however He so chooses. Yesterday we told the girls that Olivia may not come home with us but go to be with Jesus in heaven, then last night as I prayed with the girls, Sienna puts her hand on my arm and says "We forgot to pray for Olivia to come home with us." so we prayed for Olivia. The odds are not in favor of Olivia, but the LORD is not about odds. That is what I tell myself. But what do we wait for? I don't know what we wait for, but I am trying to wait on the LORD, and wait for His answer, whatever His answer is and just know that He is God.
Thank you LORD.